Send a keyring to Ryan who has Cystic Fibrosis and leave a pin on the virtual map

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Permalink Reply by Deb~ Community Manager on January 3, 2010 at 7:50am

Gonna get right to that Viks! Hope he gets a bazillion :o)

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Permalink Reply by viks on January 3, 2010 at 1:53pm

Thank you :) He has had 3 so far (one from me), his latest update is

Ryan managed to recover in time for his 16th birthday and his Dad took him and a few mates out to the Cinema to see Avatar followed by a McDonalds (only thing Ryan enjoys eating at the moment). After that, two of his mates stayed over and they played on the Xbox for most of the night. Many thanks to everyone who sent birthday cards and wishes to Ryan.



Ryan also had a great Christmas Day and was in high spirits. We had his Nan and Grandad over for the day and he was his usual cheeky self. However, on Boxing Day Ryan coughed up some blood. It was only a small amount so I decided just to monitor him giving him extra nebulised drugs. That evening Ryan started coughing up lots of blood accompanied by chest pain and getting really stressed. I contacted the Children's Assessment unit and was told to get him to hospital as soon as possible. We have unlimited open access to the hospital so it saves time as we don't have to go through A&E. After an x-ray and doctors examination, Ryan was admitted to hospital. His port was accessed and IVS were started. The doctor said the blood was most probably due to inflammation and infection (Ryan's lungs are colonised with Pseudomonas plus he had a Streptococcus pneumoniae infection).


Ryan was comfortable during the night despite still coughing up blood. He was discharged the following evening as I can administer his IV antibiotics at home for the next two weeks. The blood stopped after three days but at every cough we all make sure Ryan is ok. He has a follow up appointment in a week’s time. Coughing up blood is quite common in patients with CF, however this is the first time it has happened to Ryan and it’s very scary to be honest. We’re hoping to get a few answers at his review

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Permalink Reply by CharityJen on January 3, 2010 at 6:23pm

Dear Viks,
I just joined the giving challenge and came across your post. We're happy to send something to Ryan and will get it out right away. We hope he's doing better...
Blessings,
Jen

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Permalink Reply by viks on January 4, 2010 at 12:43pm

Thank you :)

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Permalink Reply by Mary Johnson on January 4, 2010 at 8:24am

I have the perfect vintage, 'new/never used' keyring to send to Ryan from Texas. It's from a jobsite I worked on - the South Texas Nuclear Project between Bay City and Matagorda, TX - my first job in 1986 after graduating from college. Shipping out later today.

Mary

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Permalink Reply by viks on January 4, 2010 at 12:43pm

Thank you :)

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Permalink Reply by Mary Johnson on January 4, 2010 at 1:59pm

I also found a keyring from American Red Cross, where I used to work, and a shark bottle opener/keyring and baseball cap with a shark on it - both from Curacao, Netherlands Antilles. We went there for my birthday this year. So those went with the STNP keyring. Hope Ryan enjoys them.

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Permalink Reply by viks on January 5, 2010 at 1:22pm

Thank you, I'm sure he will love it :)

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Permalink Reply by Paula Swenson on January 4, 2010 at 1:08pm

I'm going to pass this info about Ryan on to a student of mine, Petr. His son has CF, and I think it be great for them (Petr and his son) to send Ryan a keyring and letter from the Czech Republic.Thanks for sharing this info.
~peace and joy~

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Permalink Reply by viks on January 5, 2010 at 1:21pm

Thank you, thats really lovely of you :)

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Permalink Reply by Sara Jo Buffington on January 10, 2010 at 11:50am

I'm gonna go find a great keyring from here in Chicago tonight! I will get it shipped out tomorrow on my lunch break. Sending Ryan much love, strength, and wishes of good health! Thank you for sharing this opportunity with us.

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Permalink Reply by hjpelham on January 14, 2010 at 1:55pm

Ryan, a key ring is on its way from Asheville, NC. We're nestled in the Blue Ridge Mountains. It's a beautiful place. I'm sending you positive thoughts and healing prayers. Godspeed.

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